eRegistry for major Rare Anaemias


EUROPEAN EPIDEMIOLOGICAL SURVEILLANCE FOR MAJOR RARE ANAEMIAS

European Network for Rare and Congenital Anaemias

ENERCA is currently in its fourth phase (e-ENERCA), which started in september 2013. Its main objective is to provide professionals and patients with e-Health tools to ensure the same level of access to rare anaemias services across Europe. e-Health services will be developed through the implementation of three e-platforms endorsed on the ENERCA website.

Work Package Leader:

TIF is the leader of the Work Package on European epidemiological surveillance for major rare anaemias which aims to develop a centralized electronic registry service for patients with haemoglobin disorders.

Associated partners:
Acknowledgment:

New e-Health Services for the European Reference Network on Rare Anaemias (e-ENERCA)

This eENERCA research project is funded by the European Commission’s Executive Agency for Health and Consumers
under the call for proposals 2012 – second program of community action in the field of health (2008-2013).